Watch and wait,active monitoring

Hi. Can i ask the people who are on watch and wait how often between your consultant appointments? I was every 3mths,but ive decided to do every 4mths because i felt i was always there,12 weeks passes so quickly and your back again. I have mcl stage 4.

2 Likes

Hi New York, I have CLL and I have been on watch and wait for 15 years. I have always been on quarterly blood tests until recently when the consultant changed me to six monthly, unless my symptoms exacerbated. I was also discharged back to my GP with the proviso that if my symptoms or blood tests showed cause for concern I would be fast tracked back to the consultant. I had mixed emotions when I was discharged back to my GP, but I have always been happy with the timings of my blood tests. I always get anxious before any medical appointments or blood tests. The GP surgeries blood tests are more comprehensive than the consultants anyway. I also chart my blood tests and watch for anomalies anyway. I believe in listening to my medical team and going with what you feel comfortable with, good idea for a post please keep posting how you are

1 Like

Hi, I’m every four months at the moment.

2 Likes

Erica,while i say its better for me,every 4mths,i dont thithink i could do 6mths. Last time i had pet scan and there’s another mass behind the left groin ones,i think sometimes you can have too much of one thing,i needed brain space to get on with my life till chemo and sct. May i ask what stage you are and how long you’ve been on w and w. 3yrs end of February for me,stage 4. Kind regards Becky

2 Likes

Hi Becky, of course you can ask me anything. I was diagnosed with CLL in Dec 2003 at stage 1. I have been a very lucky girl and I have kept fairly stable and been on watch and wait ever since. However I have had several other health challenges since including an irregular heart beat, osteoporosis, continuing shingles, infections etc. Take care and keep posting.

1 Like