My Mum was diagnosed with MDS with 13% excess blasts in April 2017. She had a SCT on 30 January 2018 and was over 500 days post STC when she relapsed with 22% blasts just this week. However, her consultant is optimistic that Azacitidine with a Lymphocyte top-up will get her back to remission.
Needless to say we are all scared and it has been a massive shock for the whole family.
Does anyone have any experiences with MDS relapse?